A special Charity Dinner at the lovely Bistro L’Hermitage French Restaurant to Benefit the Stephen Monaco Nutrition and Genetics Fund of the Rare Disease Institute of Children’s National Hospital.
Enjoy a fixed Five Course Dinner with wine pairing meal to support patients like Stephen with rare metabolic diseases.
Due to a late diagnosis of a rare metabolic disorder, isovaleric acidemia, our son Stephen suffered a severe brain injury at age 3 ½ resulting in significant disabilities and medical issues… preventable had he benefited from comprehensive newborn screening at birth. All babies now benefit thanks to changes in NBS laws nationwide impacted by Stephen’s life.
Through this fund, you can help improve life for others living with similar rare metabolic disorders. Rare disorders like Stephen’s and his sister Caroline affect approximately 1 in 100,000 births and require the highly specialized expertise of the specialists and their team in genetics for their care. To date, we have raised over a quarter of a million dollars for this amazing group of specialists thanks to the many kind hearts and generous donations over the past five years. all in Stephen’s honor.